I don’t want to believe it. I told Mark last night that I was so very scared about his “procedure” today. He told me not to worry about it ’cause he knew it was just the hole had gotten bigger and they’d fix it. I told him I didn’t think so and my heart of heart’s told me it was worse than that. He asked me what I thought it was. I said blockage, open heart surgery.
I never in a million years dreamed that it would be even worse than that!!!!!
Mark has a very rare heart condition called pulmonary hypertension. The doctor who worked on him today said that name means that the blood pressure of his heart is too high and they have no idea what causes it. He is going to try his best to treat it here BUT the medicine is very expensive and there are only a handful of clinics in the country who deal with treating this condition. If he can’t help Mark, he will be sent to one of these clinics in Chicago.
I can’t take this!!!! I am crushed, overwhelmed, I don’t even have a word that is close enough to conveying how I feel. Shock is putting it mildly. I thought I was prepared. I thought God had forewarned me that it was going to be bad, but this?????????????????
Why does it have to be something so RARE????????????????? Can anyone reasonably expect to receive more than one miracle in their life, more than two miracles for a couple? I’m afraid to believe that there will be another, what if there’s not? I wouldn’t survive it.
Your prayers are needed more than ever before!
Picture was found on pinterest.com
Well, I’m pretty sad today. Mark went yesterday to have the ultrasound done on his heart and now has to go back on Friday for the angiogram. They said his right side was too inflamed to see anything. When they go in on Friday, if they can determine the cause and IF it’s minor enough, they will fix it right then and there but if not, we are probably looking at open heart surgery.
I feel like a broken record saying this but, please keep him in your prayers.
Love and hugs to all, Terri
I don’t know where I left it last time I posted but: last Tuesday we went to meet with Mark’s new cardiologist and the Heart Center, whom I liked very much; the testing results showed that he has an enlarged right ventricle he needs to go get a procedure done that takes ultrasound pictures of his heart; depending on what they show, he will either require an electroencephalograph to diagnose what and where the damage is or the medication he was given to keep his blood pressure up during the day should suffice to stop his passing out.
Mark has known for about 15 years that he has a tiny hole in his heart but it’s not caused him problems before. The doctor said he was probably born with it and it has now become larger. He also said that, should that be the diagnosis, he can patch it with a fairly minor procedure. Of course, as I told my family, when you’re talking about messing with my husband’s heart – nothing is minor to me!!
Thank you all for your thoughts and prayers, please continue – they’re working!! At the very least, I’m thankful that we are finally moving in the right direction and he didn’t have a heart attack but just passed out instead. The doctor said it could easily have been the other way around.
Love and hugs
The world keeps turning
as faster it goes
deliver their blows
the acid ‘s churning
as all heaven know
and what I’m learning
while the stress grows
is all I’m earning
is an ulcer, suppose?
Teresa Marie 9/2/13 ©
Well, I said I would update you on everything, hopefully I remember it all:
Dad is all clear of cancer. We are guessing that it just went too long before they realized that he needed surgery and has suffered permanent nerve damage in his spine The dementia is continuing to worsen.
Jodie’s son was buried on Wed. Her grandson is doing pretty good now; granddaughter is doing much better and expected to recover, fully? We will pray it’s so! Children are strong, resilient little boogers. Hoping for the best.
Mark is back to square one, we think, but are unsure. One message said the tests he did were negative but he still needed to get the rest done. The cardiologist told him last Friday that he didn’t, ? He has an appt. with his regular doctor tomorrow, guess we’ll see what he says then. He still can’t go back to work until they find the cause. Burning through his vacation time rapidly and harvest will soon be upon us
I need a break. The stress finally took its toll and I slept for 2.5 days straight. Only woke up to go to the bathroom and eat occasionally. Hanging in there though Thank you all for your comments, love and prayers!! It means the world to us.
Love and blessings to you all, Terri
Now for some wisdom:
I thought that I might actually lose it today! I’ve been barely hanging on with my last fingernail, then it broke!!
Mark took his sugar readings and they were as follows: 139 (scary but he didn’t fast as long as he was supposed to so we disregarded it), 89, 86 and 88. Which, according to the papers they gave him, was a possible indication of hypoglycemia. Then he went to the doctor this afternoon. The nurse practitioner that he saw before was sick and so he got a different one.
She completely threw out the notion that it was his blood and went straight for another possibility. Guess what she said? His heart! As she was getting some papers she had printed for him, in walks his doctor who is on vacation this week. He came in specifically to talk to Mark and order a battery of heart tests.
I didn’t want to believe what I thought I had heard in my spirit intentionally when this all started but, as with every time I ignore those voices, I should have listened!! I’m numb right now with the shock to my system.
For better news:
Dad’s biopsy came back negative, so no cancer.
Kevin said that their grandson was released from the hospital yesterday. The granddaughter is doing well enough that they are putting that piece of her skill back on and she is no longer being kept sedated. She is expected to recover with, hopefully, minimal or no permanent damage to her brain. They are all staying at the Ronald McDonald house so they can be close to her. Jodie’s son’s funeral was today.
Please pray for Mark some more!!! I’m worried sick, in more ways than one but mostly because, what would I ever do without my soul mate here with me? I can’t fathom it
Love, hugs and blessings to you all, Terri
Well, I’m still hoping for the lesser of evils here. The Nurse Practitioner said, with his family history, we are probably looking at “early onset diabetes”. They sent him home with a One Step, I think that’s what it was called, to check his blood sugar this weekend and keep a diary of the readings. (Don’t forget about the fact that Penny has it and so we will know what those mean when he takes them.) He is to go back on Monday and they will go over it all. He said to me, “Ya, well you know I don’t like needles and shots!” My reply was, “I’d take your needle over mine any day of the week. Your’s would be no more than a bee sting!!” I’ve been getting the larger diameter/shorter needles lately which are only 2 1/2 inches long instead of the 3 inch ones. The MS drug is inter-muscular so the needle has to be long enough to go beyond the layers of skin and fat on my thigh. Hey wait a minute! Now that I have lost 40 pounds, it seems that I should be rewarded with maybe a 2 inch needle, doesn’t it? I wish
Anyway, there is nothing new to report on our other crisis for now, but no news is good news, right?!
Thanks again for your prayers, they are being heard!
With my love, , Terri
P.S. I definitely need to have something on the lighter side, so look for my next post following shortly
P.S.S. I almost forgot about the pics of my latest work in progress, almost finished, in the dragon saga No story as been written for it yet, sorry. This house has it all, even a bonsai tree in the back and a magic vine!
I thank you for your faithfulness to me and mine! i know I can count on you in times of need.
My brother and his wife said thank you and please continue to hold them up prayer as the next few days will be critical.
Their grandson suffered a severe laceration to his head but was up and trying to play this afternoon. Prognosis is good that he will fully recover.
Their granddaughter suffered severe brain trauma resulting in a hematoma. They have removed a small section of her skull to relieve the pressure and keeping her sedated.
Thank God for their car seats! Otherwise it would have been a triple fatality. So use them, my friends, and buckle yourselves up too.
Much love to you all, God bless, Terri