Crushed (and update on Mark)

 

I don’t want to believe it.  I told Mark last night that I was so very scared about his “procedure” today.  He told me not to worry about it ’cause he knew it was just the hole had gotten bigger and they’d fix it.  I told him I didn’t think so and my heart of heart’s told me it was worse than that.  He asked me what I thought it was.  I said blockage, open heart surgery.

I never in a million years dreamed that it would be even worse than that!!!!!

Mark has a very rare heart condition called pulmonary hypertension.  The doctor who worked on him today said that name means that the blood pressure of his heart is too high and they have no idea what causes it.  He is going to try his best to treat it here BUT the medicine is very expensive and there are only a handful of clinics in the country who deal with treating this condition.  If he can’t help Mark, he will be sent to one of these clinics in Chicago.

I can’t take this!!!!  I am crushed, overwhelmed, I don’t even have a word that is close enough to conveying how I feel.  Shock is putting it mildly.  I thought I was prepared.  I thought God had forewarned me that it was going to be bad, but this?????????????????

Why does it have to be something so RARE?????????????????  Can anyone reasonably expect to receive more than one miracle in their life, more than two miracles for a couple?  I’m afraid to believe that there will be another, what if there’s not?  I wouldn’t survive it.

Your prayers are needed more than ever before!

SPEECHLESS

Taken Down (And Update on Mark)

Taken Down

 

I don’t know where I left it last time I posted but: last Tuesday we went to meet with Mark’s new cardiologist and the Heart Center, whom I liked very much; the testing results showed that he has an enlarged right ventricle he needs to go get a procedure done that takes ultrasound pictures of his heart; depending on what they show, he will either require an electroencephalograph to diagnose what and where the damage is or the medication he was given to keep his blood pressure up during the day should suffice to stop his passing out.  

Mark has known for about 15 years that he has a tiny hole in his heart but it’s not caused him problems before. The doctor said he was probably born with it and it has now become larger.  He also said that, should that be the diagnosis, he can patch it with a fairly minor procedure.  Of course, as I told my family, when you’re talking about messing with my husband’s heart – nothing is minor to me!!

Thank you all for your thoughts and prayers, please continue – they’re working!!  At the very least, I’m thankful that we are finally moving in the right direction and he didn’t have a heart attack but just passed out instead.  The doctor said it could easily have been the other way around.

Love and hugs 

Terri