Crushed (and update on Mark)

 

I don’t want to believe it.  I told Mark last night that I was so very scared about his “procedure” today.  He told me not to worry about it ’cause he knew it was just the hole had gotten bigger and they’d fix it.  I told him I didn’t think so and my heart of heart’s told me it was worse than that.  He asked me what I thought it was.  I said blockage, open heart surgery.

I never in a million years dreamed that it would be even worse than that!!!!!

Mark has a very rare heart condition called pulmonary hypertension.  The doctor who worked on him today said that name means that the blood pressure of his heart is too high and they have no idea what causes it.  He is going to try his best to treat it here BUT the medicine is very expensive and there are only a handful of clinics in the country who deal with treating this condition.  If he can’t help Mark, he will be sent to one of these clinics in Chicago.

I can’t take this!!!!  I am crushed, overwhelmed, I don’t even have a word that is close enough to conveying how I feel.  Shock is putting it mildly.  I thought I was prepared.  I thought God had forewarned me that it was going to be bad, but this?????????????????

Why does it have to be something so RARE?????????????????  Can anyone reasonably expect to receive more than one miracle in their life, more than two miracles for a couple?  I’m afraid to believe that there will be another, what if there’s not?  I wouldn’t survive it.

Your prayers are needed more than ever before!

SPEECHLESS

Taken Down (And Update on Mark)

Taken Down

 

I don’t know where I left it last time I posted but: last Tuesday we went to meet with Mark’s new cardiologist and the Heart Center, whom I liked very much; the testing results showed that he has an enlarged right ventricle he needs to go get a procedure done that takes ultrasound pictures of his heart; depending on what they show, he will either require an electroencephalograph to diagnose what and where the damage is or the medication he was given to keep his blood pressure up during the day should suffice to stop his passing out.  

Mark has known for about 15 years that he has a tiny hole in his heart but it’s not caused him problems before. The doctor said he was probably born with it and it has now become larger.  He also said that, should that be the diagnosis, he can patch it with a fairly minor procedure.  Of course, as I told my family, when you’re talking about messing with my husband’s heart – nothing is minor to me!!

Thank you all for your thoughts and prayers, please continue – they’re working!!  At the very least, I’m thankful that we are finally moving in the right direction and he didn’t have a heart attack but just passed out instead.  The doctor said it could easily have been the other way around.

Love and hugs 

Terri

The Latest on Mark After His Doctor Visit

Well, I’m still hoping for the lesser of evils here.  The Nurse Practitioner said, with his family history, we are probably looking at “early onset diabetes”.  They sent him home with a One Step, I think that’s what it was called, to check his blood sugar this weekend and keep a diary of the readings.  (Don’t forget about the fact that Penny has it and so we will know what those mean when he takes them.)  He is to go back on Monday and they will go over it all.  He said to me, “Ya, well you know I don’t like needles and shots!”  My reply was, “I’d take your needle over mine any day of the week.  Your’s would be no more than a bee sting!!” I’ve been getting the larger diameter/shorter needles lately which are only 2 1/2 inches long instead of the 3 inch ones.  The MS drug is inter-muscular so the needle has to be long enough to go beyond the layers of skin and fat on my thigh. Hey wait a minute!  Now that I have lost 40 pounds, it seems that I should be rewarded with maybe a 2 inch needle, doesn’t it?  I wish

Anyway, there is nothing new to report on our other crisis for now, but no news is good news, right?!

Thanks again for your prayers, they are being heard!

With  my love, ,  Terri

 

P.S.  I definitely need to have something on the lighter side, so look for my next post following shortly 😉

P.S.S.  I almost forgot about the pics of my latest work in progress, almost finished, in the dragon saga   No story as been written for it yet, sorry.  This house has it all, even a bonsai tree in the back and a magic vine!

IMAG0407 IMAG0415 IMAG0409 IMAG0418 IMAG0417 IMAG0420 IMAG0424

 

 

Hello My Friends!!

Hello my friends!!  I have missed you all very much.  I have been extremely tied up right now with my jewelry; Sara and going back to school things; family crisis; and today my mother’s eldest brother passed away.  

So there has been a lot of hectic stuff to deal with, along with my normal health issues and a slight shingles re-occurance 😦

I had a few minutes and decided to take the time to catch up with you all and do a few quick posts.

It will probably be another week or so of the hit and miss posts/responses, I’m sorry.

I hope to be back on a regular schedule soon though!

Love and hugs to you all!!  God bless, Terri

Result of Blood Work are In!

I know that many of you have been concerned with my health problems of late and so I thought I should tell you about my doctor visit yesterday and the results of my blood work they just called me with.

My doctor and I talked about this “virus” that I can’t get rid of.  She agreed that it could be something that I have to build up an immunity to but said that it could be a couple of other things too.  So, in addition to all my regular blood work that they do every 3 – 6 months, she add a few more tests in there this time around.  

Her nurse called me this morning with the results:

My thyroid levels are still way off; that in itself could be causing most of my symptoms; so we are increasing my dosage.

Since diabetes runs in my mother’s family, we always check for that; I am now officially pre-diabetic and have to start a diet/nutrition plan and exercise program.  

My cholesterol levels, which are usually excellent, are off; LDL is high; so there is more new meds there to take.

She is putting me back on my acid re-flux med’s.

Some of the things that I have been putting off to the MS scarring on my brain may not be what I think, so I am going to go through some testing with a neuro-psychologist for Adult Attention Deficit Disorder. 

Anybody want to come trade places with me for a while and do all this stuff for me?  lol, just kidding!  It could be a lot worse and I will deal with these things in the same manner that I have dealt with everything else, with faith in my Lord and trust in my Father!!

Just thought I should fill you in.

Love and hugs,

Terri

Been Sick, Still Sick, Sick of Being Sick!

Hi everybody!  Sorry for inundating you with posts today, but I have been playing catch up!  I’ve been sick, am still sick and sick of being sick!  I do believe it is just a minor MS flair up of symptoms and not a full blown attack.  I have been sleeping A LOT, which is okay because our bodies repair themselves during our sleep, right?!  So, please forgive me if I have missed answering any of your comments or not visited you back of late 😦  It was definitely not intentional!!

I do believe that I am on the mend, but not quite there yet.  I have run out of steam for now and will be back with you all tomorrow, I hope and pray!!

With love,

Terri

With My Apologies To Anyone Slighted

image source: google.com/images

I just wanted to take a moment to apologize to anyone that I may have slighted in the last few days.  I know that I failed to return visits and I feel awful when I do that 😦

I have been sick for the last week in varying degrees.  I have slept a lot, ran a fever, felt better, got sicker, and now I hope to be back on the upswing.  That’s my prayer anyway.

It is the pits when you don’t have much of an immune system.  Between the damage it received from my thyroid problems 10 years ago (it was enlarged 2x the normal size and producing hormones at twice the levels) and the MS (which is an autoimmune type of disease where the immune system attacks your own body instead of the infection), I don’t heal well.

I know that when I do get well, I will have to go back through to see what I may have missed and maybe even re-read what I have posted, lol.  That’s pretty crazy but true.  

Anyway, I hope to be back to some form of normal in the next few days – that is to say “normal” as I get 🙂

Peace and blessings,
Terri 

 

A Hoax Everyone Should Know About – A Pathetic Trick To Play On People!

Read this Mom. Then pass it along to all you sent this e-mail to. (And the person who sent it to you.)
 
 
 
 
 

 

 


Mornin all,
This note was forwarded from a stem cell transplant patient of mine.  Please read  and forward.  It honors a cancer patients desire. 
Thanks, Sheila
Slow 
Dance 
This 
is a poem 
written by a teenager with cancer.
She wants to 
see how many 
people get her poem

It is quite the poem 
Please pass it

  
on.This 

poem was written by a terminally ill young girl in a 
New York 

Hospital.

It was sent 
by

a medical doctor – 
Make sure to read what is in the closing statement 
AFTER THE 
POEM.

SLOW DANCE

Have you ever 
watched 
kids

On a merry-go-round?

Or listened to 
the 
rain

Slapping on the ground?

Ever followed a 

butterfly’s erratic flight?

Or gazed at the sun into the 
fading 
night?

You better slow down.

Don’t 
dance so 
fast.

Time is short.

The music 
won’t 
last.

Do you run through each day

On 
the 
fly?

When you ask How are you?

Do you hear 
the 
reply?

When the day is done

Do you lie 
in your 
bed

With the next hundred chores 

Running through 
your head?

You’d better 
slow down

Don’t dance so 
fast.

Time is 
short.

The music won’t 
last.

Ever told your 
child, 

We’ll do it 
tomorrow?

And in your 
haste,

Not see 
his

sorrow?

Ever lost 
touch,

Let a good 
friendship die 

Cause you 
never had time 

To call 
and say,’Hi’

You’d 
better slow down.

Don’t dance 
so fast.

Time 
is short.

The music won’t 
last..

When you run 
so fast to get somewhere

You 
miss half the fun of getting 
there.

When you worry and hurry 
through your 
day,

It is like an unopened 
gift….

Thrown 
away.

Life is not a 
race.

Do take it 
slower

Hear the 
music

Before the song is 
over.

———— 
——– 

FORWARDED 
E-MAILS ARE TRACKED TO OBTAIN THE TOTAL 
COUNT.

Dear All: 
PLEASE pass this mail on to everyone you know – 
even to those you don’t 
know! It is the request of a special girl who will soon 
leave this world 
due to cancer.

This young girl has 6 months left 
to live, 
and as her dying wish, she wanted to send a letter telling everyone to

live their life to the fullest, since she never will. 

She’ll 
never make it to prom, graduate from high school, 
or get married and have a 
family of her own.

By you sending 
this to as many people as 
possible, you can give her and her family a 
little hope, because with every name 
that this is sent to, The American 
Cancer Society will donate 3 cents per name 
to her treatment and recovery 
plan. One guy sent this to 500 people! So I know 
that we can at least send 
it to 5 or 6. It’s
not even your money, just 
your 
time!

PLEASE PASS ON AS A LAST REQUEST. 

10461

My Tuesday Thoughts – The Healer

 

I am, once again and always, singing the praises of my LORD!  Jesus has shown me over and over again that He is the Great Physician, but now He has also shown my brother!  He never ceases to amaze me with His graciousness and love.  Wow!!  Don’t ever let anyone tell you that prayer doesn’t work!!

Some of you will remember this but others won’t, so please allow me to lay a little foundation for those who aren’t aware of the details.

Almost 6 years ago, my bother had a liver transplant because he had cancer.  Everything went very well and with each passing year he felt better and better.  That is until last year.  For some reason, which is still yet undetermined, he started passing out.  Well he eventually ended up in the hospital here where we live, not where they did the transplant.  The doctors treating him must not have been in close consultation with the other doctor because they put him on a medication that was extremely damaging to his liver.

After he was released from the hospital, he complained to the doctor here that the medicine was making him feel bad and told him that he wanted to get off of it.  This doctor refused to do that because it was a different doctor that put him on it.  It was a huge mess!  When my brother finally had his blood work done for the transplant doctor, it showed that he was rejecting the liver that he had successfully accepted for 5 years – unheard of basically unless there are extreme extenuating circumstances.  Well, by them giving him this medicine, they caused it.  The liver doctor said that there was no way he should have been prescribed that. 

As time progressed, so did the rejection process until it became “chronic liver rejection” and there was little hope in the doctor’s opinion but he told my brother that they were not giving up.  After Christmas, when he returned to the doctor, he informed my brother that he really didn’t think he would live past it.  We were very concerned and angry at the injustice of it all.  My mother was especially fearful and confided in me that is was her worst nightmare coming true, having one of her children die before she did.  I sent out dozens of prayer requests to as many different ministries from here to the Jerusalem wall.  I prayed the 91st Psalm every day and gave my brother and mother a copy to do the same.  We bombarded heaven with our petitions.

When I checked my e-mail this morning, there was one from him telling me that his latest tests show that his liver levels are almost back to the normal ranges!  Praise God!!  They have been gradually improving every month since the first of the year.  I love the Father/Son/Holy Spirit with all my heart and soul!  I will forever sing His praise and give glory to His Name above all names!!!  If you or anyone that you know needs help/healing, pray – pray – pray and don’t give up even when you think it’s not working.  There is power in persistent prayer.  Until later…

Always remember that Jesus died for us because He loves us!

Blessed be the LORD,
Teresa Marie